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The Greatest Danger: Hypos

This is a hard post to write, because it’s about the scariest aspect of diabetes care: hypoglycemia. HyPER glycemia is high blood sugar concentration, and a long-term risk for all people with diabetes. This post is about hyPO glycemia, very low blood sugar, and it’s a deadly situation.

Eli Lily’s packaged glucagon

First of all, if your endocrinologist has somehow neglected to prescribe a glucagon syringe (pictured) get a prescription today (and maybe a new endo!).

Very low blood sugar deprives the nervous system of the chemicals it needs to function properly. The person suffering the “low” can lose consciousness and have seizures. If the low persists or worsens it can lead to death. Your perception of diabetes will change forever once your family experiences a hypo. Few things in life earn the term “terrifying.” A hypo with seizure is truly terrifying. It can be emotionally debilitating, because you now know that risk is always there, lying in wait. This is the part where I’m supposed to have something encouraging to say, but I got nuthin’. This sucks big time.

The main reason I write this post in a “beginning” diabetes blog, is because early after diagnosis, the person with diabetes will likely “feel” lows coming on, and may even be awakened. Sadly, crushingly, years of having blood sugar swings may make one less sensitive, and at risk of trending low overnight without recognizing it. For this reason, we consider Continuous Glucose Monitoring (CGM)to be a key component of the only humane health care course for those with diabetes. A CGM device with alarm, and preferably with “shutoff” control of insulin.

The glucagon pen above is the emergency treatment for someone who is low, likely recognized by entering siezure. I hate to break it to you, but a person with diabetes should never sleep alone. Good luck using that one at a singles bar! A sleepmate should always be in a position to recognize the twitching or thrashing of a seizure and trained to administer glucagon. The instructions are simple-enough, but you don’t want to be learning in the heat of an event! The glucagon triggers the liver to dump glucose into the blood stream, hopefully restoring consciousness.

To prevent low blood sugar events from reaching dangerous conditions, a CGM plus insulin pump work together to shut off insulin at selectable blood sugar concentrations. Modern pumps from Medtronic and Tandem can even use trending data to “Suspend Before Low” as the function is called. Living in great fear of hypos, we have selected the settings offering the highest-possible protection. Now, going without basal insulin for a while can result in a later “high,” but we’ve had good results in our household for the most part, with early morning blood sugars below 130 for the most part.

We’ll try to take up this dynamic interaction between automatic pumps and human metabolism at a later date. For the time being, get that glucagon and know where it is…and make sure you can hear, if not feel, your loved one who sleeps…and lives…with diabetes. Good luck! May these circumstances ever be strange to you and never experienced!

Testing, one-two. Six?

Whether you’re new to diabetes or not, you’re likely aware that the prices charged to insurance plans can vary widely. Only one of two pharmaceuticals regarded as identical may show up on your list of allowed drugs – or not – based upon negotiations that are entirely secret. In the best cases, this allows your insurance plan to put two drug firms into competition. Often in America, this means that the non-negotiated price – the retail price – is fabulously inflated. (See news stories on Epi-pens or Martin Shkreli.) We’re told that this higher starting point allows drug manufacturers to maintain enough margin to innovate on our behalf. A primary side effect is that those without insurance can find that many therapies are simply out of reach. Before the Affordable Care Act, stories of bankruptcies and deaths were prevalent. Knowing human nature, we suspect that many of these stories are absolutely true.

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Even at their negotiated prices, insurance plans are often billed higher rates than you can find for diabetic supplies. This is one reason that plans seem to be so stingy. Your endocrinologist may earnestly submit a prescription for a reasonable 6 tests per day, and your plan budgets you for 4. It’s easy to think there is scholarship or experience behind the allowance, but don’t allow yourself to think this. It’s almost certainly just economics. Information is a key tool in type 1 diabetes, and you shouldn’t skimp.

…test strips…for less than 25 cents…

My son’s condition was discovered when he had an incidence of ketoacidosis. While he was still in intensive care he was prescribed Contour Next test strips. When he was released that’s what the Doctor prescribed, and now that he’s moved to an insulin pump, that’s what his integrated glucose tester uses. These strips can easily cost a dollar per test at your pharmacy. Once your deductible is met, I can’t say what your insurance plan pays, but if they’re saving $2 per day by limiting you to 4, that’s $720 per year. A shortsighted savings on their part, but a real savings. We have been augmenting our insurance-provided strips by buying test strips through Amazon.com for around 33 cents each. An extra 100 strips can give you peace of mind by allowing you to test more often each day for almost two months. That’s about $5 per week to allow you to check blood sugar when you’re curious, not just to inform a meal bolus.

We’ve never had any trouble with supplies ending up being post-dated or problems with strips that had been environmentally damaged in shipment. If your experience is otherwise, let us know! We’ll do some research on the vendor and help keep the good guys in business!